Ellie Kate "EK," was that very special girl who touch the lives of so many people she had never even met. She was born with a rare terminal genetic disease called NKH for short. Her parents (met and got to know her incredible mom, Ryan, in 2007) have been her champions for her seven years here as she has been in and out of the hospital. She loved music and to smile. And when she was called to go home, she did so surrounded by her brothers, sister and parents. I cannot imagine a worse heart break than that of losing a child. But I do believe EK is now free from pain and dancing above as she watches over her brothers and sister. This collage was created by her grandfather.
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